Hi, Folks. There are few situations in life where we can't find a bit of room for some humour, if we look for it. For instance, last time I was in Southern General for my treatment, the cannula which feeds the drip into my bloodstream, slipped out of the vein, and I had 200 mililitres of the magic fluid pumped under my skin. This gave me a swollen arm, which subsided after a few days. I had fallen asleep while this was going on, so didn't know anything about it until I woke up. Funnier still, was the fact that I was going home at the end of the infusion, so I had to make the journey in my pyjama jacket, since I couldn't remove it because of the swelling. A right chookie I must have looked.
There are only about 400 - 500 people with CIDP (tne chronic cousin of Guillain Barre Syndrome)in the UK, quite a few of us in Scotland, so we see the same faces on a regular basis as we attend for treatment.
All in all, my life isn't so bad. I am looked after by a superb team of neurologists and an NHS for which I have the greatest admiration. Not only that, hospital stays allow plenty of time for doing crosswords.
Thank you all, and best wishes.
P